July 11, 2014 by SusanG in Helpful Tips, News, Susan Gangsei
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Casey Kasem’s Legacy for Caregivers

Casey Kasem’s death reminds us that caregiving is more than the emotional, physical and financial issues. These can be overshadowed by the legal complications of family conflict. By having a caregiving conversation with everyone and ensuring a loved one’s wishes are legally documented, families can face the unknown care giving

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June 11, 2014 by SusanG in Helpful Tips, Susan Gangsei
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What Does It Feel Like To Have Parkinson’s?

I met Bob Taylor at Parkinson’s UK. He has Parkinson’s Disease. Bob  also has a mission to help volunteers and staff understand what it feels like to have Parkinson’s so they can better support and serve those living with PD. Here is an exercise he uses with people working at

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June 02, 2014 by SusanG in Helpful Tips, Susan Gangsei
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Support Group Facilitator? Need Help?

I am starting my third book, a resource for people who are facilitating a Parkinson’s support group in their communities. I am working with Struthers Parkinson’s Center, a PD Center of Excellence on this project. I would love to talk to anyone who would be willing to share their story(s)

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May 30, 2014 by SusanG in News, Susan Gangsei
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Parkinson’s in the United Kingdom

I had the pleasure of visiting the offices of Parkinson’s UK, an organization very similar to the National Parkinson Foundation in here in the US. It is an impressive and very dynamic organization. They have raised $140M for PD research and publish a comprehensive report with the latest information. They

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May 24, 2014 by SusanG in Helpful Tips, Susan Gangsei
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Keep Caregiving From Taking a Toll on Your Back

Physical and emotional stress can lead to serious pain for caregivers. Here’s how to ease the burden. By Gina Roberts-Grey | June 12, 2012   Photos.com | Thinkstock As a caregiver, you might expect to face frustration, anxiety or exhaustion. But the chronic stress many caregivers face can also cause

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May 21, 2014 by SusanG in Helpful Tips, Susan Gangsei
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Exercize Even Effective Than Medication

 A promising technique that benefits the dementia sufferer while decreasing the stress the caregiver experiences is the Tailored Activity Program developed by a team of researchers led by Laura Gitlin at the Thomas Jefferson University’s Center for Applied Research on Aging and Health. The research shows that engaging seniors with

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May 10, 2014 by SusanG in Stories, Susan Gangsei
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I Can’t Think of a Place I’d Rather Be

Life is bittersweet for Steve Snater. He is living with his parents so that he can be a caregiver for his father, who has Parkinson’s disease (PD). “It sucks in every way,” said Steve. “But it is wonderful that I can be there for him. “I had the most wonderful

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May 07, 2014 by SusanG in Stories, Susan Gangsei
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They Don’t Know What They Don’t Know

Ashley and Justin Remus live in New Ulm, Minnesota, a farming community about 100 miles southwest of Minneapolis. They’re keenly aware of the lack of information and awareness about Parkinson’s disease (PD) in small towns and rural areas. In fact, they lived this lack when Justin’s grandfather was diagnosed with

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May 03, 2014 by SusanG in Helpful Tips, Susan Gangsei
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Some Times Three is a Crowd

Care giving for a parent consumes an adult child’s time and energy. That means that care giving can take away time and energy away from other relationships, such a wife or husband.  “Spreading yourself too thin dilutes the attention you can devote not just to anyone in your family, but

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April 30, 2014 by SusanG in Events, Susan Gangsei
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Moving Day Twin Cities

Register now for Moving Day Twin Cities 2014 Saturday, May 3, at Hilde Performance Center and Park in Plymouth. It’s more than a walk, it’s a movement. Find out more on the registration page. Prizes will be awarded to the team and individual who raise the most money. In addition, participants

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